Jump to content
Ember Hart

Do any of you have a health issues that make it hard to live a normal life?

Recommended Posts

I have fibromyalgia, roomatoyed arthritis, POTS syndrome, PTSD, Chronic Migraines, i also have more but i just cant name it all. I have tried getting a job but they said "im a helth risk." So there for i cant work. I have tried getting disability but my doctor refuse to sighn a paper. I have a youtube and i write books but it doesn't bring in the money i need for medication. I also am a person who hates taking all kinds of meds, i feel it kills the body. Any way any one else like me or know how to try and make things work better?

Share this post


Link to post
Share on other sites

i have autism and physical issues that we think might be caused by ehlers danlos (doctors are looking into it currently--- its something that causes a lot of joint issues and joint pain-- i'm constantly getting tendonitis in all my joints, dislocating my knees and hyperextending my ankles and have subluxations in my neck and early arthritis--) doctors are looking for a reason as to why my joints are so messed up for my age and i guess this is looking like it might be why.  
I was able to get disabliity since my doctor was willing to help and my past jobs were also willing to write a letter about how i was constantly having issues even when i was working, having bad days and hving to call out, etc.  being on disability helps a lot at least being able to ....live... since i wouldnt have any money otherwise  because i was trying so hard to work when i really couldnt that i was becoming suicidal because i was just in pain and stressed every day trying to do something i wasnt capable of.  now at least i have a small income to get food and pay bills and it makes it easier to live your life.  i do other things on my own like gardening and i also have a youtube channel as well  and i do art and photography on the side and work under the table a little bit with doing photography jobs so i can make a little bit of extra income when i can but at my own pace.  do you kno0w why your doctor wont help write a letter ?  do that not consider  you  disabled? 

Share this post


Link to post
Share on other sites
1 hour ago, AnnaSantina said:

i have autism and physical issues that we think might be caused by ehlers danlos (doctors are looking into it currently--- its something that causes a lot of joint issues and joint pain-- i'm constantly getting tendonitis in all my joints, dislocating my knees and hyperextending my ankles and have subluxations in my neck and early arthritis--) doctors are looking for a reason as to why my joints are so messed up for my age and i guess this is looking like it might be why.  
I was able to get disabliity since my doctor was willing to help and my past jobs were also willing to write a letter about how i was constantly having issues even when i was working, having bad days and hving to call out, etc.  being on disability helps a lot at least being able to ....live... since i wouldnt have any money otherwise  because i was trying so hard to work when i really couldnt that i was becoming suicidal because i was just in pain and stressed every day trying to do something i wasnt capable of.  now at least i have a small income to get food and pay bills and it makes it easier to live your life.  i do other things on my own like gardening and i also have a youtube channel as well  and i do art and photography on the side and work under the table a little bit with doing photography jobs so i can make a little bit of extra income when i can but at my own pace.  do you kno0w why your doctor wont help write a letter ?  do that not consider  you  disabled? 

She just thinks im to young (25 years old). I also have blood pressure issues where it fluctuates to exstream or low to a point i faint. I am qualified for a service dog but they cost an arm and a leg. I also went into a coma like state a month back. I baby sit but im barley paid like i said. I live with my mom and grandma but i feel like a burden case i cant help my family like they help me. I want to start compositions but i have no idea what to price my art at. Im also afraid no one wants to buy my art. I guess i have paranoia.  But back to my doctor she doesn't believe young people should be on disability. She said if i was missing a limb or if i had ms it be a different story. Im so discouraged i cant do anything unless its like my own business but thats hard in itself.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...

Important Information

Site Rules