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Do you have any physical abnormalities?

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Boy do I ever. I have two types of Ehlers danlos syndrome. I have the hypermobility (type 3) and also vascular EDS. My doctor lovingly referred to me as circus freak lol, my elbows pop all the way out when I lean on them and I can twist my lower arm almost 360 degrees. It looks insane. Before I was diagnosed we just thought I was insanely double jointed, since I can easily put my leg over my head, and twist my body into a pretzel lol, I can do all three splits without stretching, bend all my fingers all the way back, pop my shoulder and thumb out of socket and back in with ease. I did dance and high kick and pom growing up, not realizing I actually had a medical condition and all these crazy things I could do were destroying my joints.  

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I sure do. Scoliosis, in the top part of my spine. It's pretty mild, doesnt pain me, not really noticable unless you are a doctor and I'm bent over in front of you and you feel my spine. Also I have tiny baby toes. My mom was a smoker. I wont add a picture unless someone wants to see lol.

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24 minutes ago, Lia said:

Boy do I ever. I have two types of Ehlers danlos syndrome. I have the hypermobility (type 3) and also vascular EDS. My doctor lovingly referred to me as circus freak lol, my elbows pop all the way out when I lean on them and I can twist my lower arm almost 360 degrees. It looks insane. Before I was diagnosed we just thought I was insanely double jointed, since I can easily put my leg over my head, and twist my body into a pretzel lol, I can do all three splits without stretching, bend all my fingers all the way back, pop my shoulder and thumb out of socket and back in with ease. I did dance and high kick and pom growing up, not realizing I actually had a medical condition and all these crazy things I could do were destroying my joints.  

Wow

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35 minutes ago, misspurdy06@gmail.com said:

Wow

Lol. Also, due to the vascular EDS, I had an artery block access to my stomach so I couldn't eat food for years and was kept alive with TPN, which is basically like i.v nutrition infusions daily but that improved recently, yay! 

 

My friend in junior high has scoliosis and was supposed to wear a back brace to school daily. She started getting made fun of so she would hide it. She hid it under her bed and her psycho stepdad found it and freaked out and took her bedframe away lol

Edited by Lia
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flat feet, scoliosis, bowlegged, had to have a surgery on my jaw because it wasn't big enough so I had migraines all my childhood and I got hit with a baseball bat in first grade so my nose is really crooked

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2 hours ago, Lia said:

Lol. Also, due to the vascular EDS, I had an artery block access to my stomach so I couldn't eat food for years and was kept alive with TPN, which is basically like i.v nutrition infusions daily but that improved recently, yay! 

 

My friend in junior high has scoliosis and was supposed to wear a back brace to school daily. She started getting made fun of so she would hide it. She hid it under her bed and her psycho stepdad found it and freaked out and took her bedframe away lol

That bed frame thing is weird.

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im doubtful this is considered an abnormality, but im double jointed in a few places so I can do stuff like lick my elbow, or put my foot behind my head. 

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my eyes are two different shapes, so i have to do each eye's makeup differently in order to look like a normal human every day.

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I have a very high functioning and enlarged thyroid, functioning 10 times normal speed.

I also have very bad edema, I have no ankles. it's all just leg and sometimes I leak water because of it.

With thyroid conditions comes pain and some times, its a big achievement to get out of bed and showered.

im also diabetic. 

I'm a big girl, not going to lie, but it gets scary when you suddenly drop or gain large amounts of weight, like 50 pounds or more within a week or two of your last doctors visit. 

Edited by Sloppy Mommy

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On 2/10/2019 at 6:41 PM, JacksonRussell said:

Omg I have some foot problems too. I have extra mobility in my feet so it makes me walk weird and always fall over and hurt myself, and I also have flat feet as well. I walk so weird and people always comment on it lol

I have hyper-mobility as well- not just in my feet but in most of my joints (dr. thinks i might have ehlers danlos syndrome- its a genetic disorder with different subtypes- there is a type that causes hypermobility in the joints and super flexibility)    it was great when i was younger when i did ballet and gymnastics but then i started getting injuries- now i have chronic pain because i rolled and sprained my ankle so many times that now the ligaments are permanently torn and wont heal.  that throws off the way i walk too, i limp and causes hip and back pain from limping etc.  i get tendonitis everywhere too because of it b/c the joints move around too much when i'm doing things and are super easy to become inflamed.   anything i do just normal stuff if i do anything with too much repetition i get tendonitis in that joint and it takes over a year for the tendonitis to heal and settle down sometimes.  
ugh.  so i guess that all is pretty abnormal.  its an invisible abnormality for the most part but you can tell by the way i walk too.  

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my middle fingers both are crooked and curve inward slightly toward the middle of my body

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